Girl Power 2 Cure
Rett Syndrome Awareness Month is here! Our fantastic GP2C team has compiled several resources for utilization as you help us spread the word. Please visit our Girl Power 2 Cure, Rett University, and Rett Girl Facebook pages, or contact Amei and Kristi for any support you might need to bring awareness to your friends, families, co-workers, and extended networks.
Our theme for this year will be centered on “Rising Above Rett” (#RiseAboveRett). You will see this emphasized in all our posts and communications as we celebrate courageous families who, despite the many challenges of Rett Syndrome, find ways to overcome, participate, advocate, and influence their communities and friends. GP2C remains committed to supporting families in their day-to-day lives, and advocating for support, education, accommodation, and inclusion of our loved ones in all phases of their lives… it’s one of the most important things we do!
Girl Power 2 Cure is fighting every day to:
- Support and encourage Rett Syndrome families
- Educate, raise awareness, and promote literacy for individuals with Rett Syndrome and other complex-needs conditions
- Raise research dollars to support cure-focused and symptom-relieving treatments for our loved ones
There are many ways you can help… sponsor an event, (maybe a “virtual” run!), host a giveback with a local business, promote a Facebook fundraiser, or simply commit to recurring donations. We have tons of ideas and can help start to finish! Contact Amei (firstname.lastname@example.org) and let’s get to work conquering Rett Syndrome!
#GP2C #HopeInAction #RiseAboveRett
This month’s giveaway is brought to you by the GP2C shop! It’s Rett Syndrome Awareness Month, and we would love to give you the opportunity to win a $25 GP2C shop gift certificate!
Follow the link to enter for a chance to win!
The month of October is one that many Rett families face with courage and grace. They share their stories far and wide to raise awareness for those they hold so dear. One such family is the Boczars – Stephan, Mari, Lilliana, and Jonathan. For the Boczars, a life with Rett Syndrome (and Lilliana’s dual diagnosis of Williams’ Syndrome) was not the life that they planned, but it is the life they live. They live for the challenge, to help others, and for Lilliana. To read more of their courageous story follow the link!
Empowering parents, educators, and therapists with the knowledge and strategies to help students with complex needs reach their highest potential.
October… Rett Syndrome Awareness month is a time for our community to shine while raising awareness of the Rett Syndrome individuals and families who have changed our lives. This community is amazing in so many ways, and Susan and I are both extremely proud to be members. When we #presumepotential, and then witness results, it is so rewarding and special for all of us.
This month, we encourage you to read our Rett University blog (link below). This story is one of many that demonstrate the care of our Rett community, and how working together created a life-changing experience for a family in India.
Also, we will host our next Rett U Web Chat on October 15, 2020, at 8:00 PM EST. Susan and I will discuss Communication Partners. What are they? What do they do? And how to create a great communication partner environment. Register Here!
As the effects of the pandemic linger, we continue to focus on remote consultations for both families and school teams. Please email Kourtney@gp2c.org if you would like more information or would like to set up a remote with Susan or Kourtney.
I always say that I am the luckiest person alive because I am Kristi’s little sister. Her influence lives on today through the blessing of the work we do at Rett University, helping to bring the community together. Kristi was 10 years older than me and lived with Rett Syndrome for 51 years. Check out the entire blog HERE!
Events and Awareness
3rd Annual Rockin’ for Rett Huntsville – October
With so many unknowns related to COVID-19, the planning and execution of a live event has proven extremely challenging. Thus, we have made the difficult decision to replace our annual Huntsville get-together with a fantastic VIRTUAL event!
For your donation, you will receive a gift card to a local Huntsville restaurant, newsletter updating you on the girls and their families, and GP2C goodies.
Stay tuned for more details!
Fork Rett Syndrome – October
Fork Rett is a VIRTUAL event being held in honor of Evie Fowler and Evie Morris. We are all working hard, even in this challenging time, to make a difference in the lives of all those battling Rett Syndrome. Lets put a fork in Rett!
For your donation, you will receive a restaurant gift card, newsletter introducing you to the girls and their families, and GP2C goodies.
More details coming soon!
Mark your calendars for this great opportunity and share far and wide!
On October 17th RSAM (Rett Syndrome Association of Massachusetts) is hosting a webinar led by Michela Fagiolini, Ph.D. She will discuss the progress in Rett Syndrome research over the past ten years. Other prominent researchers will join, as well as Monica Coenraads of RSRT and Dominique Pichard from RettSyndrome.org. Presentations will be followed by a Q&A session.
To sign up CLICK HERE!
#RettSyndromeAwareness #RSAM #GP2C #CollaborationRocks
Do you have an upcoming birthday or special occasion? How about hosting a Facebook fundraiser to support Girl Power 2 Cure? This is a great way to spread awareness, raise funds, and support GP2C! It is as simple as 1-2-3!
1. Go to Girl Power 2 Cure’s Facebook Page
2. Select “Fundraisers” on the left menu bar
3. Select “Raise Money” to create your fundraiser
It’s that easy!