Maylee is your typical smiling, bright-eyed 3-year-old girl who is trapped in a body that fails...

To Those Facing Loss, We see you. We know the holidays are a glaring reminder of what should be...

We didn’t realize it then, but our journey with Rett Syndrome began on my 33rd birthday. Tori...

Halloween is this week, which can be exciting as well as give you feelings of hesitation. How can...

My daughter Skylar and I started our Rett journey on August 21, 2004, that is a day that I will...