“The Looks”; A communication journey with my Rett Syndrome sister

My name is Allie, and my sister is Emma. I am 18, and Emma is 22. Emma is nonverbal, but that does not stop us from doing all the things that sisters do; we still bond, and occasionally we fight, just like typical sisters! One day we may sit on each other and argue,...

Wheelchair Accessible Vehicles – Part 2

The ins and outs of the largest piece of medical equipment you will ever buy  By: Cesar Rivera Foreword: After Part 1 of my masterpiece (just kidding!) on WAVs last month, my wife pointed out that I assumed everyone is on the same page...  I presumed that everyone...

G1ve a Dollar-a-day in May

May is a month of new beginnings! Winter is behind us, and the hope of spring and summer are alive… and so is the HOPE FOR A CURE! Please help us in our mission to help fund the critical research that will one day heal our girls and boys. Exciting discoveries in gene...

Wheelchair Accessible Vehicles – Part 1

The ins and outs of the largest piece of medical equipment you will ever buy  By: C. Rivera Foreword: When I was asked to write about Accessible Vehicles for Girl Power, I thought to myself, no problem, I will write down a few words and be done. Anyone who knows me...

Anglers for Aubrey

Join us for the inaugural Anglers for Aubrey Fishing Tournament being held in honor of Aubrey Lohr. This fun-filled day will be held on Saturday, May 1st at Indian Rocks Beach, Florida! We are sold out of angel spots but there are still two ways to support the event:...

Girl Power 2 Cure is a nonprofit organization leading a movement to end Rett Syndrome, a severe neurological disorder that primarily affects girls but does affect boys, as well

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