Find Her

Every 90 minutes another girl is born with Rett Syndrome somewhere in the world.

Help Her

Helping means being a supporter, but sometimes it means just being a friend. 

Cure Her

There is more than hope for a cure, it's backed by research. Learn more about it here.   

Meet the Girls

Rett Syndrome takes away a girl’s ability to speak, walk, crawl, or use her hands, but it doesn’t take her spirit. Rett Girls are strong, bright, beautiful, and the ones who inspire us to fight with every drop of energy we have. Read their stories here and share them with others.

Meet the Girls

Believe in Us

I am not only a volunteer and donor, I am also a mother of a Rett girl. This organization is more than inspiring! They made me want to do more than just wish and pray for a cure, but rather become part of finding one! They make you feel so welcomed and understood, as if they have known you all your life. 

— Tarah Miller

Upcoming Event

October 6, 2017 Rollin' for Rett

Please join the Iowa State Longboard Club for a benefit ride through the park for all ages and all types of wheels on Saturday, October 7, 2017 from 11am - 1pm!

Learn More All Events

Want to get even more involved?

Ragnar 4 Rett

189 Miles for 189 Girls! Join us for the 4th Annual race with #TeamSparkle to raise funds for research!

GROW A GARDEN OF HOPE

Start a paper flower garden to raise research funds!

RUN FOR TEAM GP2C

Run any race, anywhere and spread Rett Syndrome awareness!