Meet the Girls


Rett Syndrome takes away a girl’s ability to speak, walk, crawl, or use her hands, but it doesn’t take her spirit. Rett Girls are strong, bright, beautiful, and the ones who inspire us to fight with every drop of energy we have. Read their stories here and share them with others.

Meet the Girls

Believe in Us


I am not only a volunteer and donor, I am also a mother of a Rett girl. This organization is more than inspiring! They made me want to do more than just wish and pray for a cure, but rather become part of finding one! They make you feel so welcomed and understood, as if they have known you all your life. 

— Tarah Miller

Upcoming Event


September 15, 2017 Diva's Day Out

Come join us from 10am - 4pm at the Atlantic Recreation Center in Fernandina Beach, FL for an amazing day full of Exhibitors, Music, Food and lots of "Divas"!

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