Girl Power 2 Cure is a nonprofit organization leading a movement to end Rett Syndrome, a severe neurological disorder that primarily affects girls but does affect boys as well.
1. STARS-Sarizotan (Newron Pharmaceuticals, active/not recruiting) Focused on improving Rett-related breathing episodes https://www.rettstars.com/ 2. Low Dose Ketamine (RSRT/Vanderbilt, active/recruiting) Focused on relief of Rett-related...
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With some sadness, but nothing but our best wishes, we bid farewell to Roger Brooks! After almost 10 years of dedicated service to Girl Power 2 Cure and Rett University as both a board and full-time staff member, Roger has accepted a position with...
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My daughter will be 26 next month. She's been diagnosed with Rett syndrome for 20 years now. 20 years. It seems so long and yet a blink of an eye at the same time... like a movie you're so engrossed in that you don't realize how long it is.What kind of movie would it...
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There are some pretty amazing athletes in our GP2C community. We are inspired by them and the extremes they will go to. One of those people is Carey Keever. She is participating in the Lake Placid Ironman. This will be Carey’s third Ironman. Even for avid athletes,...
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My daughter Emersyn is 10 years old. Two years ago, Emersyn participated in the phase 2 Trofinetide trial sponsored by Neuren Pharmaceuticals. Neuren has since partnered with Acadia Pharmaceuticals, and we are anxiously awaiting enrollment for phase 3 trials later...
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My name is Jennifer Zoll, I am a physical therapist that has had the honor of working with Juliana Brooks, a beautiful 12- year old girl with Rett Syndrome. Prior to meeting Juj, (her nickname, that I have adopted for my OWN daughter) I had never even heard of Rett...
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Imagine getting your Rett Girls socks, AFO’s and shoes on and skipping a step? No shoe laces to tie! Check out these great lock laces! Tons of great colors too! NO-TIE LACING SYSTEM: Turn any pair of lace-up tennis shoes into slip on...
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Rett University has partnered with Susan Norwell to bring you her popular Communication Flip Books. The books have been professionally printed on durable Mohawk Performance Polyester plastic material that won’t tear, is weather resistant and environmentally friendly;...
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We’d like nothing more than for you to join us in our fight to cure Rett Syndrome and free girls around the world who are trapped in their bodies.
You are the difference! Your financial support fuels our mission to work fearlessly to see Rett Syndrome become the first curable neurological disorder.
We have lots of goodies and support materials in our GP2C store for Rett families and supporters. Check it out and maybe snag a few things.