Meet the Girls


Rett Syndrome takes away a girl’s ability to speak, walk, crawl, or use her hands, but it doesn’t take her spirit. Rett Girls are strong, bright, beautiful, and the ones who inspire us to fight with every drop of energy we have. Read their stories here and share them with others.

Meet the Girls

Believe in Us


I am not only a volunteer and donor, I am also a mother of a Rett girl. This organization is more than inspiring! They made me want to do more than just wish and pray for a cure, but rather become part of finding one! They make you feel so welcomed and understood, as if they have known you all your life. 

— Tarah Miller

Upcoming Event


October 6, 2017 Rollin' for Rett

Please join the Iowa State Longboard Club for a benefit ride through the park for all ages and all types of wheels on Saturday, October 7, 2017 from 11am - 1pm!

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