Girl Power 2 Cure is a nonprofit organization leading a movement to end Rett Syndrome, a severe neurological disorder that primarily affects girls but does affect boys as well.
June 2019 – It’s Summer! GP2C Team;Summer is here! We hope this letter finds everyone looking forward to a little break from the hustle and bustle of school days, and hopefully a little rest and relaxation doing your favorite summer things! Granddaughter...
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1. STARS-Sarizotan (Newron Pharmaceuticals, active/not recruiting) Focused on improving Rett-related breathing episodes https://www.rettstars.com/ 2. Low Dose Ketamine (RSRT/Vanderbilt, active/recruiting) Focused on relief of Rett-related...
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It was a good summer, plain and simple... though plain and simple our summer was not. We were following the progress of the adolescent trials, and from what we could glean, the effects of the drug were exciting and positive. It’s easy to become desperate...
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Halfway through our clinical trial, I wanted to give up. I never thought I would feel that way. I was expecting to start the trial and see the positive effects of the drug. Then, we would hopefully wait for rapid approval by the FDA. That’s not what...
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Our daughter was chosen to be the first girl at our Rett Clinic to be in a first round trial for a new and potentially symptom changing drug, for Rett Syndrome. When we got the call, we were thrilled and even more thankful to be a part of something that could possibly...
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My daughter will be 26 next month. She's been diagnosed with Rett syndrome for 20 years now. 20 years. It seems so long and yet a blink of an eye at the same time... like a movie you're so engrossed in that you don't realize how long it is.What kind of movie would it...
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Imagine getting your Rett Girls socks, AFO’s and shoes on and skipping a step? No shoe laces to tie! Check out these great lock laces! Tons of great colors too! NO-TIE LACING SYSTEM: Turn any pair of lace-up tennis shoes into slip-on sneakers. LOCK LACES are the...
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Rett University has partnered with Susan Norwell to bring you her popular Communication Flip Books. The books have been professionally printed on durable Mohawk Performance Polyester plastic material that won’t tear, is weather resistant and environmentally friendly;...
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We’d like nothing more than for you to join us in our fight to cure Rett Syndrome and free girls around the world who are trapped in their bodies.
You are the difference! Your financial support fuels our mission to work fearlessly to see Rett Syndrome become the first curable neurological disorder.
We have lots of goodies and support materials in our GP2C store for Rett families and supporters. Check it out and maybe snag a few things.