“It’s coming soon, Poppy!”
My granddaughter Blakely (age 8) has been blessed to attend several “day camps” in the Nashville area this summer. Blakely is a little unusual in that she seems to thrive on social interactions, especially with her peers. I think she tends to get a little bored at home and likes to be on the go! None of these camps were particularly designed for special-needs participants, but with a little pre-coordination and the help of some wonderful individual volunteers, Blake was able to participate. Here at GP2C, we tag these kinds of experiences as #RisingAboveRett! – read the rest of Kevin’s letter to the community.
This month’s GP2C giveaway offering is a bundle of our customized Team Buttons! Your child’s photo can be a beautiful reminder and motivator for your supporters. All of our wonderful children are the reason why we want to #CureRettSyndrome!
Follow the link below to enter for a chance to win 20 customized Team Buttons from GP2C!
Summer Learning – Tips from Rett U instructors Susan Norwell and Kourtney Barnum.
Welcome to summer! We hope everyone is enjoying relaxed days, and some time to travel, swim and recharge. While the downtime is a welcome respite, it can also be a time when our kids lose some of the skills acquired from the prior school year.
Click here for tips to help keep those skills sharp, including subscribing to the Rett U Book Club!
Rett-U Book Club will be ongoing throughout the summer with a book every other week. And finally, please contact us if we can assist with your upcoming school year planning! We are anxious to help with IEPs and other interactions with teachers, aides, and administrators to further your child’s communication and educational experiences. Have a great summer and enjoy this time with your child!
Whenever you read a good book, somewhere in the world a door opens to allow in more light.
Family Support Blog
Summer is in full swing! Be sure to follow along as we offer tips and tricks to make your summer a great success in our Summer Fun series! In case you missed it, here are some tried and true ways to thoroughly enjoy a trip to Disney World this summer!
Inquiries or comments can be sent to our Family Advocacy and Support Team, Jenny Tesler and Carolyn Fowler.
Please join us for a Kendra Scott Gives Back event on July 18th from 6 – 8 pm at the Baybrook Mall in Friendswood, TX. The evening will be filled with sips & sweets, beautiful jewelry and lots of fun! Kendra Scott will donate 20% of all sales to Girl Power 2 Cure. Not in the area? No problem, just call the store anytime on the day of the event to place your order (281-954-3725). This amazing evening will be a celebration of Kenzi and Kaylie Morell’s birthday!
Come one, come all to the 6th Annual Move It Move It for Mateah on August 17th at 8 am. This inspiring run will be at the beautiful Edness K. Wilkins State Park in Evansville Wyoming! 10% of total proceeds will benefit the non-profit host Darbi’s Gate, with the remainder donated to Girl Power 2 Cure to benefit Rett Syndrome research.
The 4th Annual Racing for Rett 5K will be held in Harrisonville, MO on October 12, 2019. Racing for Rett is a 5K run/walk and silent auction that raises money and awareness for Rett Syndrome. In 2017, more than 200 participants raised over $14,000! We expect even more this year, and would love to have your support! Registration details coming soon!
Our 2nd Annual Rockin’ for Rett Huntsville Dinner will be held October 17th at the beautiful Huntsville Botanical Gardens! This will be an evening filled with great food, music, silent auction and an amazing guest speaker. Tickets, tables and sponsorship opportunities are available at the links below!
Smash Out Rett, Tampa, FL. Join us for a “smashing” good time on Sunday, October 2019. Release your frustration by totally annihilating a room filled with dishes, TVs, and windshields. Weapons of choice include sledgehammers, baseball bats, pipes, golf clubs, and more! This is the perfect way to relieve stress, and also a great workout! Registration coming soon!
DISNEY PRINCESS 2020 is in full swing! Our 2020 Team is filling fast. We have a limited number of 5K, 10K, Half Marathon and Fairy Tale Challenge bibs remaining. Please join our dynamic, fun and passionate teams! We have discounted rates at one of Orlando’s best resorts, and:
- Consulting sessions with Rett U coaches Susan Norwell and Kourtney Barnum
- Team dinner
- RunDisney Health & Fitness Expo booth
- Finish-line tent at all the races!
This will be GP2C’s 9th year participating in this MAGICAL weekend! Come join us at Walt Disney World with over 150 runners helping to make an impact for all of those battling Rett Syndrome!
Thank you to our 2020 Disney Princess Sponsors: