Dear GP2C and Rett University Community, some important news from our friends at the Rett Syndrome Research Trust regarding Neurogene clinical trials… PROGRESS!...
Research Spotlight
This section of the website will keep you updated with curated research news, new treatments, and other promising developments for Rett Syndrome
Latest Research News
Acadia Announces Daybue (Trofinetide) is Now Available Commercially
Dear GP2C and Rett University Community – Great news! Acadia’s DAYBUE (Trofinetide) is now commercially available. See the entire press release HERE! And to all of our Rett families, please note that Acadia has established comprehensive family support for DAYBUE at...
Acadia Announces U.S. FDA Approval of Treatment of Rett Syndrome
Girl Power 2 Cure and Rett University are excited to share the news! The first ever targeted treatment for Rett Syndrome has been approved by the FDA. Trofinetide (“DAYBUE”) will be available in April 2023. Congratulations and THANK YOU to all of our friends at Acadia...
Neurogene Announces New Rett Syndrome Drug Application Accepted by FDA
TODAY IS A BIG DAY! YOUR RESEARCH CONTRIBUTIONS ARE HARD AT WORK! We at Girl Power 2 Cure and Rett University are pleased to share this exciting news! Today, the Rett Syndrome Research Trust shared Neurogene’s announcement that its Investigational New Drug...
Acadia Pharmaceuticals Announces New Rett Syndrome Drug Application Accepted by FDA
Dear GP2C Community, Encouraging news from the Rett Syndrome research world! Many of our GP2C families have been connected to the Acadia Trofinetide trials over the last few years. The announcement below informs that the U.S. FDA has agreed to a “priority” review of...
BIG NEWS – Taysha Gene Therapy for Rett Syndrome – Clinical Trials
There's big news associated with an announcement from Taysha Gene Therapies. Please see the full announcement at the link here and some selected excerpts that I've highlighted after the link. Click here for the full announcement Excerpted highlights: Taysha...
Research Review – February 2022
Dear GP2C & Rett University Communities, Keeping you informed! Here are some recent articles regarding work funded by our friends at Rett Syndrome Research Trust, and other companies investigating Rett-related research: In Editing RNA, Researchers See...
Acadia Pharmaceuticals Announces Positive Top-line Results
Dear GP2C Community, Here is a significant announcement about pharma test results that is promising. I've highlighted specific sections of significant for your review. Regards, Kevin Acadia Pharmaceuticals Announces Positive Top-line Results from the Pivotal...
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