This section of the website will keep you updated with curated research news, new treatments, and other promising developments for Rett Syndrome
Latest Research News
Hey GP2C and Rett U Community! Check out this super-encouraging news from our friends at RSRT! Taysha Rett Program Updates March 2024 On March 19 Taysha Gene Therapies provided clinal updates on its gene therapy clinical trials for Rett syndrome. Here is a summary of...
Hey GP2C and Rett University Community! More encouraging news from the Taysha Gene Therapy trials… your research dollars and donations are making a difference! Taysha Reports Preliminary Results on Gene Therapy Trial Patient #1 …TSHA-102 was well-tolerated with no...
Hey GP2C and Rett University Community (especially our international friends) – more good news from the research and treatment world! From our friends at Acadia Pharmaceuticals: “…Acadia Pharmaceuticals Inc. today announced that it has expanded its current licensing...
Dear GP2C and Rett University community – see this important announcement regarding the Neurogene Clinical Trial. From Monica at RSRT: “…For the second time in a week I’m writing to you with an important update on a gene therapy clinical trial. Neurogene has just...
Hey GP2C and Rett University Community – big news! The first Taysha Gene Therapy patient has been dosed! Your research dollars are working… Let’s all pray for this first patient, her family, and for the results we all hope for! “… I’m pleased to share some exciting...
Dear GP2C and Rett University Community, some important news from our friends at the Rett Syndrome Research Trust regarding Neurogene clinical trials… PROGRESS!...
Dear GP2C and Rett University Community – Great news! Acadia’s DAYBUE (Trofinetide) is now commercially available. See the entire press release HERE! And to all of our Rett families, please note that Acadia has established comprehensive family support for DAYBUE at...
Girl Power 2 Cure and Rett University are excited to share the news! The first ever targeted treatment for Rett Syndrome has been approved by the FDA. Trofinetide (“DAYBUE”) will be available in April 2023. Congratulations and THANK YOU to all of our friends at Acadia...
TODAY IS A BIG DAY! YOUR RESEARCH CONTRIBUTIONS ARE HARD AT WORK! We at Girl Power 2 Cure and Rett University are pleased to share this exciting news! Today, the Rett Syndrome Research Trust shared Neurogene’s announcement that its Investigational New Drug...
Dear GP2C Community, Encouraging news from the Rett Syndrome research world! Many of our GP2C families have been connected to the Acadia Trofinetide trials over the last few years. The announcement below informs that the U.S. FDA has agreed to a “priority” review of...
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