With some sadness, but nothing but our best wishes, we bid farewell to Roger Brooks! After almost 10 years of dedicated service to Girl Power 2 Cure and Rett University as both a board and full-time staff member, Roger has accepted a position with the Southwest Transplant Alliance in the Dallas/Fort Worth area. We are so thankful to Roger for his service, not only to GP2C, but also the entire Rett Syndrome community. Roger leaves a legacy of commitment to our cause, and most notably his passion to enhance the lives of children through development of inclusion, literacy and education programs for ALL, no matter what their challenges might be. Thank-you Roger, and good luck in your new endeavors (and we look forward to seeing you at Disney Princess 2020)!
With change comes great opportunity, and with Roger’s departure, Rett University coach and instructor Kourtney Barnum has agreed to an expanded role in the administration of Rett University day-to-day activities. Together, Kourtney, Susan and I will ensure that this important mission continues without interruption. Please do not hesitate to reach out to either Kourtney (email@example.com) or me with any questions, requests, or issues as we finalize this transition!
And in case you missed it… 2019 is indeed the “Year of the Trial” for Rett Syndrome symptomatic and curative treatments. We are extremely excited about our collaboration with Rettland Foundation, as together we endeavor to raise funds to ensure our Rett families are supported in their participation. These trials are so important to our loved ones, and full participation is critical to advancing treatments through FDA approval phases. You can read more about the anticipated 2019 trials, and support this important work here.
Thanks to Carolyn Fowler (and husband Stephen) for hosting An Evening of Hope for Rett Syndrome in honor of their daughter Evelyn! It was a beautiful event and served to increase awareness of the GP2C mission for all in attendance!
Finally, our redesigned GP2C and RettGirl.org websites are nearing completion! Look for our debut the weekend of May 18th, as we execute our vision to deliver dynamic and relevant content to Rett Syndrome families world-wide. Please reach out to our Family Advocacy and Support team, Jenny Tesler and Carolyn Fowler, with any comments or suggestions for the new sites! You can reach them at firstname.lastname@example.org, or drop them a note on Facebook or Instagram!
Have a great May!
Kevin, Development Director – Girl Power 2 Cure