PROFESSIONAL ADVISORY BOARD


STAFF EXECUTIVE BOARD PROFESSIONAL ADVISORY BOARD POWER TEAM

Members of the GP2C Professional Advisory Board (PAB) provide advice and guidance as we fulfill our mission to raise awareness, support families and fund research for Rett Syndrome. We value the advice and assistance of these professionals which are crucial to the future of our organization and our ability to provide quality programs and services to the Rett Syndrome community, our volunteers and our supporters.

DOMINIQUE PICHARD COLOTON, MD


Dr. Dominique Pichard is physician trained in internal medicine, pediatrics, and dermatology.  Dominique is also the mother of an amazing daughter, Catalina, who has Rett Syndrome. Her expertise is focused in the areas of general and pediatric dermatology. Prior to her residency at Georgetown University/Medstar Health, she served as an internal medicine and pediatric resident at the University of Minnesota. Earlier in her career, she served as a lipid biochemistry researcher at the University of Maryland. She received her Medical Degree from Georgetown University, and holds a Bachelor of Arts from the University of Pennsylvania in Biologic Basis of Behavior.

“GP2C was born after observing girls helping and playing with a girl with Rett Syndrome. In the same spirit, I want to use my knowledge and experience as a physician to help others along this journey of life with Rett syndrome.”


ALLISON FOLEY, MD


Dr. Allison Foley is the Medical Informatics Officer at St. Jude Heritage Medical Group in Fullerton, California. She joined the group 12 years ago to practice Internal Medicine, but for the past 8 years has split her time between seeing patients and serving as the group’s Medical Informatics Officer. Her other commitments include serving on the Medical Group’s Board of Directors and St. Joseph Health’s Physician Leadership Steering Committee. She also serves on several professional advisory boards for their software partner, Allscripts. Her professional interests include Health IT, specifically its impact on transforming the delivery of healthcare, as well as new care delivery models such as Patient Centered Medical Home.

Dr. Foley graduated Phi Beta Kappa from Brown University in Providence, RI where she received a Bachelor of Science degree in Neuroscience. She went on to earn her Medical Degree from The Johns Hopkins University School of Medicine, graduating Alpha Omega Alpha. She completed her residency in Internal Medicine at the University of California, San Francisco. Dr. Foley is a Diplomat of the American Board of Internal Medicine and a member of the American College of Physicians.

"I am very honored to be serving GP2C, an organization that inspires me by its never ending commitment to our girls with Rett Syndrome.  GP2C believes in what our girls can do and seeks to maximize their lives today while working tirelessly to find a cure.  Our daughter Emma was diagnosed in 2005, and we are more hopeful than ever for a cure.  I believe the passion, commitment and hard work of GP2C will be instrumental in that effort."


TINA GARBY, Psy.D.

Tina Garby is a psychologist in private practice in Arizona. Through her career she has realized how family members of individuals with mental illness, behavioral problems, and other syndromes and disorders often do not receive the support they need while loving and caring for their loved ones. For family members of girls with Rett Syndrome this can be especially difficult and often starts with them trying to have their daughters appropriately diagnosed. Someone who is very close to her lost her precious young daughter to complications from Rett Syndrome. Sadly a cure for Rett Syndrome was not found in time for this angel; however, everyone needs to work hard to find a cure so no other parent has to do the unthinkable and bury their precious angel too soon. 

“It is a privilege to be a part of such an amazing and important group. All little girls with Rett deserve the opportunity to dance, laugh, gossip, run and play so let’s find a cure!”


LEAH MUHLENFELD


Leah Muhlenfeld has spent over a decade helping companies of all shapes and sizes develop recognizable brands and communicate their message on and offline. Both agency and client side experience, combined with for profit and nonprofit models, she helps identify business goals and creates integrated marketing plans to drive better business. Leah is an adoring wife and busy mother to three amazing children. The endless work and dreams of families raising daughters with Rett touches her heart and moves Leah to help GP2C rid the world of Rett Syndrome. 

"I’m excited to be involved with Girl Power 2 Cure for so many reasons. It’s a powerful voice that can drive awareness of Rett Syndrome. It creates a place where families who’ve been impacted can find support. It helps healthy girls learn fundamentals of compassion for their peers with needs. And it can empower everyone to fundraise so research can find a cure for this girl-centric disease. I see huge potential for GP2C to help other kids like our dear family friend Anna Cate. She’s the most courageous 15-year-old girl I know."


WILL RABKE


Will lives in Richmond, Virginia with his wife Emilie and their three kids—Anna Cate, Betsie and Eli. Anna Cate was diagnosed with Rett Syndrome in 2006.

Will is an attorney with the law firm of Graybill, Lansche & Vinzani where he focuses his practice on mergers and acquisitions and private equity transactions. The majority of Will’s practice consists of advising companies in acquisitions across a broad range of industries. As a small business owner for nearly ten years prior to law school, Will brings an unusual perspective to the practice of law with a focus on providing efficient results and insightful advice to his clients.

In addition to his corporate legal practice, Will actively assists other Rett families with legal issues arising from having a daughter or sister with Rett; often this assistance relates to developing IEPs or communicating with school systems.

“It was an easy decision to serve on the PAB when asked, because I think it is vital that all of the families impacted by Rett work together and provide assistance to each other in any way possible. For me, that means that I contribute professionally however possible.

I have watched over the past couple of years how GP2C has impacted my daughters, both my older daughter with Rett and her little sister. GP2C has been instrumental in creating a better community of support for my daughter through her friends and our family.”


CAROL WEISMAN


Carol Weisman is the president of Board Builders. She is an internationally known speaker, author, trainer and consultant who specializes in volunteerism, fund raising and governance. Carol works primarily in the US, Canada, Australia and the UK. She has served on 36 boards and has been president of 7. She has a Masters Degree in Social Work from Washington University.

Carol is the author of nine books. “Raising Charitable Children” is in its 3rd printing and was featured in The New York Times, Parade Magazine, and Scholastic Parent and Child. Her latest book , “Transforming Ordinary People into Fundraising Superheroes” is about to go into its next printing and she is working on a 10th book on marriage.

Before founding Board Builders, Carol was a pediatric social worker at St. Louis Children’s Hospital and Children’s Hospital National Medical Center.

She is the only speaker on fundraising and governance who has also done stand-up comedy.

“What makes this organization so amazing is that in our lifetime, this horrible, cruel condition can be cured and young girls can take a major part in it.”

 

 

 

In February 2013, our two-year-old daughter was diagnosed with Rett Syndrome. Girl Power 2 Cure (GP2C), their staff, members, and supporters, have become a beacon of light for me and my family. They bring an air of excitement, youthfulness, and fun to a very serious diagnosis. 

— Candice