Sisterly Love and Celebrating 51!

July 27, 2016

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Meet Kristi and her two sisters, Kourtney and Kari, who planned a fun adventure in June to Discovery Cove in Orlando, FL. Kristi, who has Rett Syndrome, recently celebrated her 51st Birthday!

Happy Birthday Kristi!

Earlier in the year, Kourtney and Kari traveled to Arizona, but could not bring Kristi which bothered them both immensely. Kourtney shares, "I decided we were going to figure out a way for us to have a sisters' trip with Kristi. Fast forward about 7 months and Kari gets an opportunity to go to Discovery Cove with a group she is a part of and she can bring guests. She calls me and asks if I'm ready to do this. My answer was “yes” of course! Now to plan the trip to make sure Kristi's needs were met and all three of us came back in one piece."

Dinner, dancing, a ride around the lazy river, swimming with the dolphins and more! Kourtney shares some of the fantastic highlights from their girls trip with us:

“The two-day trip couldn't have gone better. At dinner, Kristi was all smiles and loved dancing with her little sister Kari. Discovery Cove was amazing and Kristi loved every minute, except when we put her on the lift to get in the lazy river. She wasn't too sure about that or the lazy river at first, especially after we had to go through the waterfall…but once she realized her little sisters were doing all the work and she could truly be lazy, she was the happiest girl in the world! She was laughing at her little sisters trying to stay afloat while keeping her afloat. After the lazy river and lunch, it was our turn to swim with the Dolphins. With some help from the wonderful lifeguards and staff at Discovery Cove, Kristi was able to participate in all parts of the dolphin interaction except the actual swimming. Though it was a quick two-day trip, it was two days filled with memories, laughter and moments that no one can replace.

The best part of it was seeing Kristi's smile throughout the whole trip and telling Rett syndrome to back off. This was something Rett was not going to take away from us.
Those memories are ingrained in our heads and the smile on Kristi's face are ingrained in our heart. Now off to plan our next trip.”

This awesome weekend looks like it was packed with #girlpower, sisterhood, and some fun in the sun!

Do you have a favorite summer activity or outing that you’d like to share with GP2C? Email jen@gp2c.org.

Looking for summer activities and resources? Check out our Rett Girl Summer Magazine by clicking here!

Power On!
GP2C

Additional note: Kourtney has just started as a Rett University Coach helping girls with Rett Syndrome learn to communicate. Learn more about the program and Kourtney here.

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I am not only a volunteer and donor, I am also a mother of a Rett girl. This organization is more than inspiring! They made me want to do more than just wish and pray for a cure, but rather become part of finding one! They make you feel so welcomed and understood, as if they have known you all your life. 

— Tarah Miller