We are the Helms Family from Palatka, Florida. Our sweet Karysn was born February 23, 2015 and from the moment she arrived our family was smitten! Karsyn has a big sister (Kamryn), big brother (Bryson), Mom (Kristy), and Dad (Bryan) plus numerous family, friends and community members who love and adore her.
We received the official diagnosis of Rett Syndrome about two years ago, and from that moment we felt the need to reach out and find as much support and information as possible so that we could help our girl live the best life! We are very thankful to have found Girl Power 2 Cure. They have given us a place to meet other families and a platform to help educate and raise awareness about Rett Syndrome and what it looks like for our family.
Karsyn has a genuine love for people and I can vividly remember the first time I saw her draw others in with her sweet eyes and cute personality. While regression stole that away from her for a bit, we have seen that sweet personality come back more and more each day. The days can be tough with Rett, but we have hope! We have hope in the everyday, small successes of communicating something new and exciting with family and friends and we also have hope that one day we will have a cure! As we continue to raise awareness about Rett Syndrome and funds for a cure, we will live each day celebrating and cherishing the little (and big) moments we get to experience with our Karsyn.
