GP2C team – Happy back to school! We hope you are enjoying the latest edition of Rett Girl Magazine. We want to offer our most heart-felt thanks to Bridget MacDonald for all of her hard work and dedication to Rett Girl over the past several years, and wish her luck as she departs from Rett Girl to dedicate more time to her family. Luckily for us, we look forward to her continued participation on the GP2C Power Team!
As you have opportunity, please stop by the GP2C Shop and meet some of our new collaborating artists like Taryn Haas. We also have new products from Kourtney Barnum and Candice Samples-Morris! We are excited to feature these new designs from our talented community, and would love to hear from you if you have additional ideas for products that we might feature.
September is shaping up to be a great month at Girl Power 2 Cure. We have several events in work, including a sold-out Rockin’ for Rett Huntsville, Rett U Live in Jacksonville, FL, continuing registrations and fundraising events for Disney Princess 2019, and an exciting Rett U seminar series (in collaboration with the University of Alabama Huntsville and Tobii Dynavox) for local educators beginning in north Alabama later in the month. We are hard at work spreading awareness and helping the Rett Syndrome community in every way we can!
Here’s a quick clip from the Rett Syndrome research world…
Trofinetide:
Over the last few years, many of you have followed the development of Neuren’s new drug, Trofinetide, through its early-phase safety and efficacy trials. The announced alliance between ACADIA Pharmaceuticals and Neuren Pharmaceuticals is yet another example of the exciting progress we are seeing in the ongoing battle to develop and bring-to-market treatments for our kids. Much like the Novartis/AveXis acquisition announced earlier this year, the ACADIA/Neuren alliance signals strong support and “big name” backing for the expensive and often complex path to FDA approval. We will continue to follow this and will keep you informed!
Thanks, and stay tuned for more as we approach Rett Syndrome Awareness month in October. Please let us know if you are considering any kind of awareness or fundraising campaign for October… we have many resources available to support our community, and we would love to help administer, promote or recognize your event. And from all of us at Girl Power 2 Cure and Rett University, have a great September!
Kevin
