Happy Summer to our GP2C Community! We are all ready for a break from school and a little warm weather! I hope this letter finds everyone well and looking forward to some summer fun. This letter is coming to you from the beach where Blakely and I are digging our toes in the sand for a few days before the Memorial Day rush!

From prior news, just wanted to let everyone know that the Novartis-AveXis acquisition is complete as of mid-May! This is exciting news for our community and bodes well for the continued progress of the AVXS-201 gene therapy trials. We now have the strength and resources of the fourth largest pharmaceutical company in the world behind this important work. Several other exciting research projects have been announced or recently completed, and I would invite you to review their progress here: https://reverserett.org/research/clinical-trials/. So pat yourself on the back… these projects cannot happen without your generous research-focused contributions!

Speaking of fundraising… we continue to make outstanding progress toward our fundraising goals for 2018. But as we say at GP2C, there’s still work to do! We are making plans for several rides, runs, dinners, Facebook Fundraiser contests and other events as the year progresses, so please stay in touch with our complete list of upcoming events in every newsletter! And if you have any great ideas, let us know – we are ready to support you with registrations, event planning, merchandise, prize packs and just about everything you need to execute an outstanding event!

And in more exciting news from GP2C, we have expanded our Power Team! Make sure to read about our newest members and their collective passions to help us achieve our goals for conquering Rett Syndrome, supporting our families, and growing Rett University. We are super-excited about our team and can’t wait to see the energy and results we know they will bring!


Kevin, GP2C Director of Development