You'll never know the power of the purple card until you try!
The Purple Card is a simple and powerful way to explain Rett Syndrome and share your story with people in passing. Just imagine never having to explain it in front of your daughter or son again -it really is a relief.
Your daughter’s or son's purple card will hold her /his name, a custom web page (if you have one with GP2C), and some quick facts about Rett Syndrome.
The free web page on Girl Power 2 Cure (see examples), gives you a way to share more photos, tell your story, link to your blog and other cool features.
already ordered and need to submit a photo? click here
Twice this summer I ran into people I had not seen in a few years. Both of them pulled Sarah's purple card out of their wallet and said, 'I have been carrying Sarah's purple card ever since you gave it to me. She is my inspiration.'
So, we stopped trying to call it a business card, or a Rett card, or an awareness card... it is now just THE PURPLE CARD
I not only hand them out to friends and family; I leave them with my check at restaurants, at the checkout and trick-or-treating!
Lori Moorehead, granddaughter Xayia
I have left cards at businesses and have handed them out to friends and others I meet who are interested in knowing more, but we might not have time to talk at that moment.Some have said they were able to check the website and find more information they never realized was available--ie: Laura's new teachers are really researching Rett and how to teach a girl with this condition. So it was a great spring board for people to use when researching on their own time.
Tina Walton, daughter Laura
I don't know what we would do without our purple card. We have used it everywhere. In the store when strangers are staring. When those uncomfortable moments come where people are asking too many questions and it is neither the time nor the place. When people are arguing that your child has that, "Aspirin disorder." Or when they keep telling you that it is not Rett it is Tourette.
I love being able to hand them a card with facts and a place to learn more.When our daughter was in the hospital we handed it to residents, nurses, surgeons. We had to send someone home to get more after doctors and social workers kept coming in and asking for them.We have been told that they are they best idea ever for a special needs kid with a uncommon disorder. I could go on and on. Every member of our family has a handful in their wallet.
Terri Vejrosta, daughter Abby
Our cards are new! We just got them about a month ago. But, I remember before we had them, how I wished I had something to pass out so people remembered what we had told them about Rett Syndrome! Many people seemed interested in knowing more, but it's hard to give them enough information in such a short amount of time, let alone expect them to remember it. So far, we have passed them out at Leah's school, the grocery store and lots of other places around town. We also attach one each time we go somewhere for donations. We gave some to Leah's school and both sets of her grandparents so they can spread the word too!
Maren Layton, daughter Leah
Our story-- I guess you could say is that we are very new to this... We've met a lot of amazing people in the last 7 months since our diagnosis (Wow.... 7 months... that's it?! Why does it seem like an eternity ago? Oh wait....) ANYWAY, we didn't know how to "use" the purple card when we first ordered it... Maybe because Anna was still tiny and we could get away with the "premie" excuse... Or maybe because we were still accepting and "dealing" that Rett was now and forever (NOT forever, right?!) a part of our lives.
But I had a total moment of clarity of the power of the purple card when I took Anna in for a haircut a few weeks ago. The hairstylist says, "She's 2? Wow, she's so quiet." I answered, "Yea... she's a shy one." Then she asks, "Does she crawl... or walk?" Hmm someone was fishing for information! Before this moment, I used to become upset when I was asked questions like this...But I found a huge moment of healing when I laughed, and smiled, and said with the most peace I have felt in months since our diagnosis, "Well, Anna has Rett Syndrome. It is an awful neurological disorder that messes up everything she tries to do. She can't talk, has limited use of her hands, and can't crawl or walk, but she is super smart and can hear us talk about her. Anna understands everything and is very smart." At that moment, Anna looked up and gave that smile, anytime this conversation starts to unfold, and her mama finally achieved clarity on how to "use" the purple card!!
"And here," I said to the hairstylist, reaching into my purse. "This is Anna's purple card, and it can tell you all about her and the hundreds of thousands of other girls like her." The lady smiled, said thank you, and finished up our haircut.As I was paying and about to leave, I looked back to say goodbye, and she was holding the card so tight, reading it with tears in her eyes, and ran over to give us a hug. "I'm going to share this with my friends and family," she said. It was a perfect example of the perfect power of the purple card.
Stefanie Gutierrez, daughter Anna
I LOVE these cards. we hand them out EVERYWHERE we go! I sometimes don't have time to explain Rett Syndrome and the card does it for me. It has also really helped with our golf outing. They give Kylie "a face" when I talk about her.
Suzanna Friedmann, daughter Kylie
I am not only a volunteer and donor, I am also a mother of a Rett girl. This organization is more than inspiring! They made me want to do more than just wish and pray for a cure, but rather become part of finding one! They make you feel so welcomed and understood, as if they have known you all your life.