Doctors & Therapists Directory

PLEASE NOTE:  The professional providers listed on our site have been recommended by parents of children with Rett Syndrome. We do not endorse or claim to have personal knowledge of the qualifications of these professionals. We urge you to use independent judgment when selecting someone for your child’s needs.

Doctors
Dr. Donald George Pediatric Gastroenterology Florida 904- 697-3600  
Dr. Frank Sierra Pediatric Dentist Florida 813-889-0780 https://kidssmilesdental.com/
Dr. Joseph A. Casadonte pediatric neurologist Florida 727-498-8994 https://www.hopkinsallchildrens.org/
Child Neurology Center of NW Florida Neurology Florida 850-932-5055 http://childneurologycenter.com/
Dr. Richard Reynolds Orthopedic specialist Florida 850-505-4700  https://findaprovider.nemours.org/details/623/richard-reynolds-orthopedics-pensacola
Dr. Ronald G Davis Neurologist Florida 407-293-1122 http://pediatricneurologypa.com/meet-our-staff/dr-ron-davis-md-mph-faap-president-founder-of-pediatric-neurology-p-a-et-al/
Dr. Daniel Tarquinio Neurologist Georgia   http://www.rareneuro.com/
Dr. James Wilson  Neurologist Virginia 540-985-8454 https://www.carilionclinic.org/providers/james-t-wilson-iii-md?utm_source=local-listing&utm_medium=organic&utm_campaign=appt-request
Dr. Richard Cordle   Neurologist Virginia 540-985-8454 https://www.carilionclinic.org/providers/james-t-wilson-iii-md?utm_source=local-listing&utm_medium=organic&utm_campaign=appt-request
Dr. John Schrbeier Neurologist Maryland 703-876-2788 https://psvcare.org/physicians/john-schreiber-md
Dr. Matthew Oetgan Orthopedist Maryland 888-884-2327  https://childrensnational.org/visit/find-a-provider/matthew-oetgen
Dr. Lauren Lewis Pediatric Dentist Maryland 301-881-6170  https://www.ejldental.com/
Dr. Sasha Djukic n/a Massachusetts 718-920-4378  
Dr. Aleksandra Djukic n/a New York 718.920.4378 https://www.einstein.yu.edu/faculty/9983/aleksandra-djukic/
Dr. Shannon M. Standridge n/a Ohio 513-636-4222 https://www.cincinnatichildrens.org/service/r/rett-syndrome/conditions
Dr. Patricia M. Manning-Courtney  Developmental and Behavioral Pediatrics Ohio 513-636-5340 https://www.cincinnatichildrens.org/service/r/rett-syndrome/conditions
Jodi Cristopfel, MSW, LISW-S Social Worker Ohio 513-636-0071 https://www.cincinnatichildrens.org/service/r/rett-syndrome/conditions
Dr. Peter Heydemann Neurologist Illinois 312-942-4036 https://www.rush.edu/kids/services-conditions/pediatric-neurology
Dr. Steven M. Mardjetko Orthopedist Illinois 847-375-3000 https://www.ibji.com/doctors/mardjetko-steven-md/
Dr. Michael Kipp Pediatric Ophthalmologist Illinois 630.668.8250 https://www.wheatoneye.com/our-doctors/michael-kipp-md
Dr. Steven Leber Neurologist Michigan 734-936-4179 https://medicine.umich.edu/dept/pediatrics/
Dr. Steven Deroos Neurologist Michigan 616-267-2500 https://findadoctor.spectrumhealth.org/physician/profile/694?name=Steven%20DeRoos
Dr. Sonja Norris Special Needs Dentist Michigan 517-622-4014 http://www.sonjagnorrisdds.com/
Dr. Brooke Geddie Ophthalmologist Michigan 616-267-2605 https://findadoctor.spectrumhealth.org/physician/profile/1013?name=Brooke%20Geddie
Dr. Sarah VanHouten Pulmonologist  Michigan 616-267-2200 https://doctor.webmd.com/doctor/sarah-van-houten-4f876437-37ef-4be5-9256-9b6a53c7c468-appointments
Dr. Chad Afmnan ENT Michigan 616-267-7758 https://findadoctor.spectrumhealth.org/physician/profile/24
Dr. Robert Conway Specializes in genetics Michigan 517-364-5440 https://dmcmedicalgroup.com/
Dr. Deb McLeish Physiatrist Wisconsin 608-263-6540  
Dr. Ken Noonan Orthopedic Surgeon Wisconsin 800-323-8942 https://www.uwhealth.org/findadoctor/profile/kenneth-noonan-md/7033
Dr. Elizabeth Moberg Physical Medicine & Rehabilitation  Wisconsin 262-527-1998 https://www.aurorahealthcare.org/doctors/elizabeth-ann-moberg-wolff-md
Dr. Amy Grelle Family Medicine Wisconsin 608-798-3344 https://www.uwhealth.org/findadoctor/profile/amy-r-grelle-md/6162
Dr. Amber Stocco Pediatric Neurology Oklahoma 405-713-7060 https://integrisok.com/doctors/amber-stocco
Dr. John Grunrow Gastroenterologist Oklahoma 405-271-6549 https://findadoc.oumedicine.com/john-e-grunow?utm_source=local&utm_medium=organic&utm_campaign=gmb
Dr. Joseph Davey Orthopedic Surgeon Oklahoma 405-271-2669 http://orthodoc.aaos.org/jdavey/
Brian Malloy, DDS  Pediatric Dentist Oklahoma 405-692-1222 http://www.smilegalaxykids.com/
Dr. Diana Honebrink Pediatrics Arizona 520-825-7111  
Dr. Theresa Grebe Genetics Arizona 602-933-4363  
Dr. Shauna Schroeder Gastroenterology Arizona 602-933-0940  
Dr. Richard Shindell Pediatric Orthopaedics  Arizona 602-604-8941 http://www.shindellmd.com/
Dr. Mary Jones Pediatrician California (510) 595-5458 https://www.childrenshospitaloakland.org/main/departments-services/rett-syndrome-clinic-89.aspx
Dr. Larry Yin Developmental Peds California 323-361-8301 https://www.chla.org/rett-syndrome-clinic#.VPtz8ULthSo
Dr. Arthur Partikian Pediatric Neurology California 323-361-8301 https://www.chla.org/rett-syndrome-clinic#.VPtz8ULthSo
Therapists
Pediatric Therapy Center of NWFL Florida 850-994-3456 http://pediatrictherapycenterflorida.com/
North Carolina Therapeutic Riding Center North Carolina 919-304-1009 https://www.nctrcriders.org/
Healing Strides of VA  Virgina 540-334-5825 https://www.healingstridesofva.org/
Rocking Horse Rehab New Jersey 973-731-8588 http://rockinghorserehab.com/
Special Strides New Jersey 732-446-0945 http://specialstrides.com/
Bergen Pediatric Therapy New Jersey 201-722-4700 http://bergenpediatrictherapy.com/aquatic-therapy/
Dr. Alycia Berg, MS, CCC-SLP Massachusetts 781-216-2100 http://www.childrenshospital.org/directory/staff/b/alycia-berg
Karen Veilleux PT, DPT Massachusetts 978-369-1400 https://www.emersonhospital.org/clinical-services/physical-rehabilitation-sports-medicine/find-a-therapist/karen-veilleux
Honey Bee Pediatric Therapy Maine   https://www.facebook.com/Honeybee-Pediatric-Therapy-225785710826867/
Riding to the Top Therapeutic Riding Center Maine 207-892-2813 http://www.ridingtothetop.org/program.php
Triangle Therapy Service, LLC Ohio 937-456-6505 http://www.triangletherapyservices.com/
ABC Pediatric Therapy Network Ohio 937-427-9200 https://www.abcpediatrictherapy.com/
Children’s Therapy Corner Michigan 989-835-6333 https://childrenstherapycorner.com/
MSU Community Music School Michigan 517-355-7661 https://cms.msu.edu/
Three Gaits Therapeutic Horsemanship Center Wisconsin 608-877-9086 http://3gaits.org/
JD McCarty Center Oklahoma 405-307-2800 https://www.jdmc.org/
Texas Horseman’s Directory Texas 720-369-9303 http://www.texashorsemansdirectory.com/TherapeuticRiding.html
Texas Children’s Hospital’s Aquatic Program Texas 832-826-2135 https://www.texaschildrens.org/departments/aquatic-therapy
Rian Chatterton, Speech Therapist, Boise Speech and Hearing Clinic Idaho 208-376-3591 http://boiseshc.com/
Nicole Nickell, Hydrotherapy, Lullaby Waters-Boise Idaho 208-949-3481 http://www.lullabywaters.com/
The Shea Center for Therapeutic Riding California 949-240-8441 https://www.sheacenter.org/
Reins California 760-731-9168 http://reinsprogram.org/
SoCal Equestrian Directory California 714-848-0966 http://www.socalequine.com/health_care/therapeutic_riders_la.htm
National Center for Equine Facilitated Therapy California 650-851-2271 https://www.nceft.org/
OT Outdoors California 858-945-3243 http://www.otoutdoors.com/
Xenophon Therapeutic Riding Center California 925-377-0871 http://xenophontrc.org/
Children’s Hospital of Orange County Rehabilitation Services California 714-509-4220 https://www.choc.org/programs-services/rehabilitation/
Special Needs Aquatic Program California 510-495-4102 http://snapkids.org/
Innovative Therapy 4 Kids (IT4K) California 760-438-3300 http://www.it4k.com/
Shriners Hospital for Children – Portland Oregon 503-241-5090 https://www.shrinershospitalsforchildren.org/portland
Children’s Therapy Center Washington 253-854-5660 https://www.ctckids.org/
Rehab Without Walls Washington 866-734-2296 https://www.rehabwithoutwalls.com/services/pediatric-neuro-therapy/
Clinics
Emory University Hospital Georgia 404-785-KIDS https://www.choa.org/medical-services/neurosciences
Center for Rare Neurological Disorders Georgia 617-984-9091 http://www.rareneuro.com/
UAB Rett Syndrome Clinic Alabama 205-934-5471 https://www.uab.edu/civitansparks/rett-syndrome
Kennedy Krieger Institute /Johns Hospitals School of Medicine Maryland 888-554-2080 https://www.kennedykrieger.org/patient-care/conditions/rett-syndrome
NJ Rett Syndrome Center – Rutgers New Jersey Medical School New Jersey 973-972-7151  
Children’s Hospital at Montefiore (CHAM) New York 347-640-2671 https://www.cham.org/programs-centers/rett-syndrome-center/our-expertise
Children’s Hospital of Philadelphia Pennsylvania 267-426-0122 https://www.chop.edu/centers-programs/division-neurology#.VXZbFs44qp5
Rett Syndrome Clinic at Cincinnati Children’s Hospital Ohio 513-636-4222 https://www.cincinnatichildrens.org/service/r/rett-syndrome/conditions
Riley Hospital for Children Indiana 317.944.5000 https://www.rileychildrens.org/
Vanderbilt University Medical Center Tennessee 615-875-9311 http://rett.vkcsites.org/
St. Louis Children’s Hospital Missouri 314-454-6120 https://www.stlouischildrens.org/conditions-treatments/rett-spectrum-clinic
Rush University Medical Center Illinois 312-942-0079 https://www.rush.edu/kids/services-conditions/pediatric-neurology
Marshfield Clinic Chippewa Falls Dental Center Wisconsin 715-738-2000 https://www.marshfieldclinic.org/Pages/LocationDetail2.aspx?TermStoreId=0aed18be-c6b9-4c58-bbc4-044ae05f0fcb&TermSetId=ce4edc81-7e19-493b-8cd0-9cf1eef83a06&TermId=d18d2753-73a1-4cb4-be4c-a2246ead7eff&UrlSuffix=Chippewa+Falls+Dental+Center
Gillette Quick Care Clinic Minnesota 651-229-3890 https://www.gillettechildrens.org/conditions-care/rett-syndrome
St. Louis Children’s Hospital Missouri 314-454-6120 https://www.stlouischildrens.org/conditions-treatments/rett-spectrum-clinic
Rett Clinic at Children’s Hospital Colorado Nebraska 720-777-4363 https://www.childrenscolorado.org/doctors-and-departments/departments/neuroscience-institute/programs/rett-syndrome-clinic/
St. Louis Children’s Hospital Kansas 314-454-6120 https://www.stlouischildrens.org/conditions-treatments/rett-spectrum-clinic
Texas Children’s Hospital (Blue Bird Circle Rett Center) Texas 832-822-1260 https://www.texaschildrens.org/departments/blue-bird-circle-rett-center/our-team
Rett Clinic at Children’s Hospital Colorado Colorado 720-777-4363 https://www.childrenscolorado.org/doctors-and-departments/departments/neuroscience-institute/programs/rett-syndrome-clinic/
Children’s Clinics for Rehabilitative Services Arizona 520-324-5437  
USC/UCEDD Rett Syndrome Clinic California 323-361-3849 http://www.uscucedd.org/what-we-do/clinical-services/rett-syndrome
Rady Children’s Hospital San Diego Rett Clinic California 858-966-6458 https://www.rchsd.org/programs-services/neurology/team/
Rett Syndrome Program/Oregon Health and Sciences University Oregon 800-452-3563 https://www.ohsu.edu/doernbecher/child-development-and-rehabilitation-center

RETT Q&A for Therapists

This Q&A session with GP2C founder, Ingrid Harding, for PediaStaff.com is perfect to share with all of the therapists that are or will be a part of your daughter’s life!

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