Category: Rett Community Blog

Most people have a hero in their life that they look up to on their journey to discover their...

For those who may be wondering about Girl Power 2 Cure, what we do as an organization and what we...

Maylee is your typical smiling, bright-eyed 3-year-old girl who is trapped in a body that fails...

To Those Facing Loss, We see you. We know the holidays are a glaring reminder of what should be...

We didn’t realize it then, but our journey with Rett Syndrome began on my 33rd birthday. Tori...

Halloween is this week, which can be exciting as well as give you feelings of hesitation. How can...

My daughter Skylar and I started our Rett journey on August 21, 2004, that is a day that I will...

We are the Domol and Seidl families, and we are running to support Willa as Team Willa Will. Our...

When we were diagnosed in 2017, my best friend asked me “What role would you like me to play...

First and foremost, we are a family not solely defined by our past or present situations. Our...