Category: Rett Community Blog
Summer Fun: Road Trips and Going Abroad
Traveling abroad, or even traveling long distances in a car, can seem a bit daunting at first,...
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Summer Fun: Sandy Toes and Pool Umbrellas!
When going to the beach or the pool there are so many things to consider. Will it be too hot? Will...
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Runner Spotlight: Michelle Boom
It’s time again for another inspiring Runner Spotlight! Meet Michelle Boom from Deerfield, NH....
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Summer Fun: Picnic Recipes
Fireworks, parades, festivals and fairs. Grilling, swimming, and picnics in the park. There are...
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Summer Fun: Unlocking the Magic of Disney World!
Thinking of a trip to Disney World this summer? The idea of a trip to an amusement park with lots...
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The Summer of HOPE… and “Adele”
It was a good summer, plain and simple… though plain and simple our summer was not. We were...
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Clinical Trials: Making a Difference You May Not See
Halfway through our clinical trial, I wanted to give up. I never thought I would feel that way. I...
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Clinical Trials: A Good Kind of Scary
Our daughter was chosen to be the first girl at our Rett Clinic to be in a first round trial for a...
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Clinical Trials: Going to Bat Against Rett
My daughter will be 26 next month. She’s been diagnosed with Rett syndrome for 20 years now....
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Running with a purpose!
There are some pretty amazing athletes in our GP2C community. We are inspired by them and the...
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Brandy & Emersyn Durrant Trial Experience
My daughter Emersyn is 10 years old. Two years ago, Emersyn participated in the phase 2...
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Inspiration Generates Action – Girls Helping Girls
My name is Jennifer Zoll, I am a physical therapist that has had the honor of working with Juliana...
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