Category: Rett Community Blog
Wheelchair Accessible Vehicles
by Amei Prachthauser | Apr 5, 2021 | Main Feature, Rett Community Blog | 0
The ins and outs of the largest piece of medical equipment you will ever buy By: C. Rivera...
Read MoreOur New Normal
by Amei Prachthauser | Feb 6, 2021 | Rett Community Blog | 0
Another “new normal” day. Another meticulously pre-screened doctor appointment. Another mask being...
Read MoreRett Sister, Volunteer, Entrepreneur Extraordinaire!
by Amei Prachthauser | Nov 6, 2020 | Rett Community Blog | 0
When school let out for the summer 12-year-old Carly and her friends found themselves wanting to...
Read MoreRaising a Boy with Rett Syndrome – The Ferdinandsens
by Amei Prachthauser | Sep 15, 2020 | Rett Community Blog | 0
Long before the “days of COVID” we knew about living in a solitary space. By “we” I mean my son...
Read MoreMy Sister Through My Eyes by Jillian Schatzman
by Amei Prachthauser | Jun 2, 2020 | Rett Community Blog | 0
When I was a little girl, each night I would ask myself, “when Michelle wakes up in the morning,...
Read MoreFREE Home-Learning Resources!
by Amei Prachthauser | Mar 20, 2020 | Rett Community Blog | 0
As we are all made to slow down and focus on things at home, we wanted to help make this time a...
Read MoreMom on a Mission: Our Journey from Rett Syndrome Diagnoses to Children’s Book Series
by Amei Prachthauser | Mar 5, 2020 | Rett Community Blog | 0
Most people have a hero in their life that they look up to on their journey to discover their...
Read MoreGP2C and the Disney Princess Half Marathon: A Family’s Perspective
by Amei Prachthauser | Feb 27, 2020 | Rett Community Blog | 0
For those who may be wondering about Girl Power 2 Cure, what we do as an organization and what we...
Read MoreFamily Spotlight: Meet the Stumps
by Amei Prachthauser | Jan 17, 2020 | Rett Community Blog | 0
Maylee is your typical smiling, bright-eyed 3-year-old girl who is trapped in a body that fails...
Read MoreLetter to Families
by Amei Prachthauser | Dec 11, 2019 | Rett Community Blog | 0
To Those Facing Loss, We see you. We know the holidays are a glaring reminder of what should be...
Read MoreFamily Spotlight: Meet the Krauskopfs
by Amei Prachthauser | Oct 28, 2019 | Rett Community Blog | 0
We didn’t realize it then, but our journey with Rett Syndrome began on my 33rd birthday. Tori...
Read MoreHalloween 2019!
by Amei Prachthauser | Oct 24, 2019 | Rett Community Blog | 0
Halloween is this week, which can be exciting as well as give you feelings of hesitation. How can...
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