Category: Rett Community Blog

When school let out for the summer 12-year-old Carly and her friends found themselves wanting to...

Long before the “days of COVID” we knew about living in a solitary space.  By “we” I mean my son...

When I was a little girl, each night I would ask myself,  “when Michelle wakes up in the morning,...

As we are all made to slow down and focus on things at home, we wanted to help make this time a...

Most people have a hero in their life that they look up to on their journey to discover their...

For those who may be wondering about Girl Power 2 Cure, what we do as an organization and what we...

Maylee is your typical smiling, bright-eyed 3-year-old girl who is trapped in a body that fails...

To Those Facing Loss, We see you. We know the holidays are a glaring reminder of what should be...

We didn’t realize it then, but our journey with Rett Syndrome began on my 33rd birthday. Tori...

Halloween is this week, which can be exciting as well as give you feelings of hesitation. How can...

My daughter Skylar and I started our Rett journey on August 21, 2004, that is a day that I will...

We are the Domol and Seidl families, and we are running to support Willa as Team Willa Will. Our...