Category: Rett Community Blog
Raising a Boy with Rett Syndrome – The Ferdinandsens
Long before the “days of COVID” we knew about living in a solitary space. By “we” I mean my son...
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My Sister Through My Eyes by Jillian Schatzman
When I was a little girl, each night I would ask myself, “when Michelle wakes up in the morning,...
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FREE Home-Learning Resources!
As we are all made to slow down and focus on things at home, we wanted to help make this time a...
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Mom on a Mission: Our Journey from Rett Syndrome Diagnoses to Children’s Book Series
Most people have a hero in their life that they look up to on their journey to discover their...
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GP2C and the Disney Princess Half Marathon: A Family’s Perspective
For those who may be wondering about Girl Power 2 Cure, what we do as an organization and what we...
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Family Spotlight: Meet the Stumps
Maylee is your typical smiling, bright-eyed 3-year-old girl who is trapped in a body that fails...
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Letter to Families
To Those Facing Loss, We see you. We know the holidays are a glaring reminder of what should be...
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Family Spotlight: Meet the Krauskopfs
We didn’t realize it then, but our journey with Rett Syndrome began on my 33rd birthday. Tori...
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Halloween 2019!
Halloween is this week, which can be exciting as well as give you feelings of hesitation. How can...
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Family Spotlight: Meet the Proffitts
My daughter Skylar and I started our Rett journey on August 21, 2004, that is a day that I will...
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Family Spotlight: Meet the Domols
We are the Domol and Seidl families, and we are running to support Willa as Team Willa Will. Our...
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Family Spotlight: Meet the Shukovskys
When we were diagnosed in 2017, my best friend asked me “What role would you like me to play...
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Rett University: New Course!
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