Sophie was born in July 2004. She’s our little “sweet pea”. She’s been a “go with
the flow” kind of girl from the start! Her personality is sweet – wanting to cuddle
or give kisses. And her smile and giggle can light up the room!
Sophie was diagnosed with Rett Syndrome in March of 2006, at around 20
months of age. She progressed as far as sitting up, but has consistently had low
muscle tone and does not crawl or walk. She also has never developed spoken
words. She’s lost most of her purposeful hand use, unable to manipulate most
toys or feed herself.
She currently participates in the Early Intervention program through the state of
Illinois and works with a great team of therapist that include a physical therapist,
occupational therapist, developmental therapist and a speech therapist.
She has started using switches to activate her electronic toys, like Elmo and
bouncing Tigger and has started using it for voice output, like telling daddy she
wants “more” at the dinner table!
She works hard every day at bearing weight on her legs, standing at the couch
and “walking” around the house with the help of mommy or daddy, so that
someday she may walk on her own! Sophie loves to watch Sesame Street &
Mickey Mouse Clubhouse. She is a big fan of books – her favorite being ‘Big
Red Tub’. She chooses that one almost every night!
She enjoys lots of music. She and mommy go to the YMCA to swim, too. She’s
also quite social, getting such a kick out of watching other kids play and get
loud! Sophie is very bright, and her family is eager to find ways to help her
communicate and explore in this world.
the flow” kind of girl from the start! Her personality is sweet – wanting to cuddle
or give kisses. And her smile and giggle can light up the room!
Sophie was diagnosed with Rett Syndrome in March of 2006, at around 20
months of age. She progressed as far as sitting up, but has consistently had low
muscle tone and does not crawl or walk. She also has never developed spoken
words. She’s lost most of her purposeful hand use, unable to manipulate most
toys or feed herself.
She currently participates in the Early Intervention program through the state of
Illinois and works with a great team of therapist that include a physical therapist,
occupational therapist, developmental therapist and a speech therapist.
She has started using switches to activate her electronic toys, like Elmo and
bouncing Tigger and has started using it for voice output, like telling daddy she
wants “more” at the dinner table!
She works hard every day at bearing weight on her legs, standing at the couch
and “walking” around the house with the help of mommy or daddy, so that
someday she may walk on her own! Sophie loves to watch Sesame Street &
Mickey Mouse Clubhouse. She is a big fan of books – her favorite being ‘Big
Red Tub’. She chooses that one almost every night!
She enjoys lots of music. She and mommy go to the YMCA to swim, too. She’s
also quite social, getting such a kick out of watching other kids play and get
loud! Sophie is very bright, and her family is eager to find ways to help her
communicate and explore in this world.
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Click ''donate" to make an online contribution to Rett Syndrome research in honor of Sophie!
