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Click ''donate" to make an online contribution to Rett Syndrome research in honor of Nora!
A special thanks to our donors:
Chad Atchinson
Mary Merritt
Misty Hageman
Denise Walace
Chad Atchinson
Mary Merritt
Misty Hageman
Denise Walace
Nora was born July 29, 2007 a healthy baby. From early
on she was almost off the charts in her height and was a
very healthy eater, gaining fast and eating lots. From day
one Nora had such a bright look in her eyes, she smiled a
true smile very early and she giggled before 3 months old.
She was a little slow to reach some of her milestones past
the three month mark, like rolling over, sitting and crawling,
but we didn't think too much about it. Of course we knew
she would do things in her own time. She started to
babble a little, mimicking sounds like: "baba", "dada", and
a funny "tdthh" sound. That stopped after a while and we
noticed that she never really played with her toys, just hit
at them and dropped them. We were starting to be a little
concerned with her development by a year when she still
wasn't crawling or gesturing or playing and had some
quirky behaviors. We got Nora into therapies and after a
while, thought she needed to see some specialists for a
diagnosis on what we thought was Autism.
Nora was diagnosed with Rett Syndrome on August 7th,
2009 a little over a week past her 2nd birthday. It was very
sad news, but we finally knew what we were dealing with.
We also knew that it wouldn't change the way we love our
little girl and our hearts are filled with more love each day
for her.
Nora goes to school two days a week for a few hours and
while she's there she receives therapy. She loves school
and we are seeing little improvements that keep us
encouraged. We hope someday that Nora will be able to
walk and communicate with us a little more. It seems
sometimes that she's trapped inside a body that won't work
for her and all we want to do is let her be free. While Nora
has never talked, never walked and never "played" with
her toys, she is still the sweetest little girl. She wins the
hearts of everyone she meets and still has the brightest
eyes... and cutest giggles. We hope for a cure someday
that will set our little girl free.
Nora's Favorites:
Ice cream
Bouncing on beds
Faces
Swinging
Any ball
Lights
Fruit snacks
Butterfly kisses
on she was almost off the charts in her height and was a
very healthy eater, gaining fast and eating lots. From day
one Nora had such a bright look in her eyes, she smiled a
true smile very early and she giggled before 3 months old.
She was a little slow to reach some of her milestones past
the three month mark, like rolling over, sitting and crawling,
but we didn't think too much about it. Of course we knew
she would do things in her own time. She started to
babble a little, mimicking sounds like: "baba", "dada", and
a funny "tdthh" sound. That stopped after a while and we
noticed that she never really played with her toys, just hit
at them and dropped them. We were starting to be a little
concerned with her development by a year when she still
wasn't crawling or gesturing or playing and had some
quirky behaviors. We got Nora into therapies and after a
while, thought she needed to see some specialists for a
diagnosis on what we thought was Autism.
Nora was diagnosed with Rett Syndrome on August 7th,
2009 a little over a week past her 2nd birthday. It was very
sad news, but we finally knew what we were dealing with.
We also knew that it wouldn't change the way we love our
little girl and our hearts are filled with more love each day
for her.
Nora goes to school two days a week for a few hours and
while she's there she receives therapy. She loves school
and we are seeing little improvements that keep us
encouraged. We hope someday that Nora will be able to
walk and communicate with us a little more. It seems
sometimes that she's trapped inside a body that won't work
for her and all we want to do is let her be free. While Nora
has never talked, never walked and never "played" with
her toys, she is still the sweetest little girl. She wins the
hearts of everyone she meets and still has the brightest
eyes... and cutest giggles. We hope for a cure someday
that will set our little girl free.
Nora's Favorites:
Ice cream
Bouncing on beds
Faces
Swinging
Any ball
Lights
Fruit snacks
Butterfly kisses
