story of the week

  • Rett in the Classroom

    Tuesday, January 31, 2012

    original story from the Belleville Patch by Brian Falzarano (Belleville, NJ)

    On Jan. 13, Belleville Middle School welcomed back a former teacher who educated students about Rett Syndrome, a severe neurological disorder.

    Linda Albanese visited Sarah O'Farrell's eighth-grade honors science class to tell pupils about her granddaughter, Michelle, who suffers ...

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  • A Visit from the Valentine Aardvark!

    Wednesday, January 25, 2012

     

     

    Santa Claus, The Easter Bunny, and the Tooth Fairy are all part of our childhood and now thanks to the Mitchell family we have a fun new character to add to our lives….the Valentine Aardvark!!


    "I began as a tradition for a family because they thought Valentine's Day ...

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  • CHAIR-ity Time!

    Friday, January 20, 2012

     

     

    Sponsored by American Society of Interior Designers - Michigan

    with the proceeds benefiting Detroit Rescue Mission,

    this CHAIRity event sure is unique!

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    Rett Mom, Lori Morris, from Michigan has something really cool to share!  She designed a unique chair for a local benefit.

    Lori tells us, ...

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  • Jogging for Jorja!

    Monday, January 09, 2012

     

     

    We love surprises in the mail! Today we got a $500 check from Kylie, a senior at Titusville High School in Pennsylvania. For her senior project, she organized and hosted a 5K Walk/Run called Running for Rett: Jogging for Jorja in honor of Jorja Peden.

    Kylie said, ...

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    Tags girl power 2 cure rett syndrome

  • Board Game Challenge!

    Monday, January 02, 2012


    CLICK TO PLAY VIDEO

    Our Founder's daughter, Sarah, got this amazing video "gift" from her Aunt Ashley on Christmas! We want to share the fun with you!

    Ashley has been hosting monthly Board Game Challenge Nights since 2007 to raise funds for Rett Syndrome research in honor of Sarah. ...

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