Click ''donate" to make an online contribution to Rett Syndrome research in honor of Jenn Jenn!
Jenn Jenn is a beautiful young girl born
September 27,2002 in Philadelphia PA . She
lives at home with her mother and father , her
favorite aunt Amber 16 and younger brother
and sister Angelina 3 and Jovanni 2.
Jenn Jenn loves Spongebob Square pants and
going to school at Easter Seals. She was
diagnosed with Rett Syndrome when she was
18 months, I was only 16 , but me jenn jenn
and the rest of our family held in there and
things got better, we meet other families and
realize that life wasn't over it was just starting
in a new light.
Jenn Jenn is a very happy girl who loves
people she likes to get real close to people
faces. And just stare at them and smile.
Actually she likes boys a lot more than girls.
Jenn Jenn doesn't talk at all or use her hands
in any way so sometimes it can be difficult to
know that she wants so we try to stick to a
schedule to keep things more understandable
to what she might want. She likes to eat
Macaroni and cheese and lasagna.
Jenn Jenn sees Dr Schanen at Dupont
Children's Hospital she is a great. We also
take her to the clinic in New Brunswick NJ
which is filled with people who know so much
about Rett syndrome. I am confident they will
find a cure and I will hear my daughter say
Mommy one day.
September 27,2002 in Philadelphia PA . She
lives at home with her mother and father , her
favorite aunt Amber 16 and younger brother
and sister Angelina 3 and Jovanni 2.
Jenn Jenn loves Spongebob Square pants and
going to school at Easter Seals. She was
diagnosed with Rett Syndrome when she was
18 months, I was only 16 , but me jenn jenn
and the rest of our family held in there and
things got better, we meet other families and
realize that life wasn't over it was just starting
in a new light.
Jenn Jenn is a very happy girl who loves
people she likes to get real close to people
faces. And just stare at them and smile.
Actually she likes boys a lot more than girls.
Jenn Jenn doesn't talk at all or use her hands
in any way so sometimes it can be difficult to
know that she wants so we try to stick to a
schedule to keep things more understandable
to what she might want. She likes to eat
Macaroni and cheese and lasagna.
Jenn Jenn sees Dr Schanen at Dupont
Children's Hospital she is a great. We also
take her to the clinic in New Brunswick NJ
which is filled with people who know so much
about Rett syndrome. I am confident they will
find a cure and I will hear my daughter say
Mommy one day.
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