"Researchers at Montefiore Medical Center have identified, in a pilot study published in the April 2012 edition of Pediatric Neurology, that children with Rett Syndrome, who cannot speak or use their hands to communicate and therefore were thought to be unable to understand and process information, do in fact exhibit meaningful visual search whereby they can process and prioritize information. This leads researchers to believe that conventional testing is not robust enough and underestimates the patients’ cognitive abilities."
In 2014, we launched Rett University in partnership with Susan Norwell, a world-renowned Rett Syndrome education and communication specialist. It is an international e-learning platform specifically designed for parents, educators and therapists of Rett Syndrome students. Experienced professionals share their cutting-edge knowledge on how to support students with Rett Syndrome and guide them to their highest levels of academic, physical and personal achievement.
At Rett University you will:
We have a daughter with Rett Syndrome and I can't say enough how much it meant to our family to find this organization. Finding Girl Power 2 Cure has given us purpose. We are motivated to work with them and raise money to find a cure for our amazing daughters!