Why not get together with your friends, troop or girls' club and learn about
something new?
Rett Syndrome only affects girls. They need you. The more people who know about
Rett Syndrome, the more people will be able to help these girls by:
WHAT CAN I DO?
Plan a "Rett Syndrome Awareness Activity."
Ingredients:
Group of girls:
You're in charge of this. You can have your friends over to your house, or plan
something for a group meeting.
A fun craft idea:
Make something with the Girl Power 2 Cure colors PINK, PURPLE and ORANGE!
This could be a beaded bracelet, a painted hat, a pot holder, ribbons tied on flip
flops, a painted t-shirt, a hair bow.....it's up to your imagination!
Take pictures of your group making the craft, along with the finished product and
we will post them in our CRAFT GALLERY!
A fun activity:
Try these ideas!
"Dress-up" party! Have fun getting dressed up and then go out somewhere and
show off your get ups....be fancy,be silly, pick a theme.....it's your choice! Plan a
trip to a local museum or park!
Tea Party! Tea Party time! Bring a favorite stuffed animal or doll and have a tea
party complete with homemade goodies that each girl brings to the party.
Dance Party! Order enough Girl Power CDs (our fund raising CD) to send home
with each girl. Have the girls bring their favorite music to the party and learn some
new dance moves! There might even be a dance teacher in your area who would
donate her time to teach the girls a dance they will love to do together over and
over and remember forever!
Time to talk about Rett Syndrome:
If you email us two weeks ahead of time with your contact info, we can mail you
special cards about Rett Syndrome to pass out to your group. (see card)
Once you go over the information on the card, you can branch out and talk related
things like:
To make this more personal you can email us for the name of a girl in your area to
"adopt." You can write her letters or email her. Send her one of the items you
created in her honor. You could even invite her to your next meeting (click here for
guidance with this).
REGISTER YOUR GROUP!
Why register? With any of the options, your group will get its own web page to show
off pictures of your event. If you make a craft, your item and photos can be posted
in our Craft Gallery! You will also receive information cards about Rett Syndrome
to share with the girls.
CLICK HERE TO REGISTER!
something new?
Rett Syndrome only affects girls. They need you. The more people who know about
Rett Syndrome, the more people will be able to help these girls by:
- learning to be their friend
- accepting them into the school system
- making sure they can participate in community activities
- pushing the interest to find a cure
WHAT CAN I DO?
Plan a "Rett Syndrome Awareness Activity."
Ingredients:
- a group of girls
- a fun craft idea
- a fun activity
- time to talk about Rett Syndrome
Group of girls:
You're in charge of this. You can have your friends over to your house, or plan
something for a group meeting.
A fun craft idea:
Make something with the Girl Power 2 Cure colors PINK, PURPLE and ORANGE!
This could be a beaded bracelet, a painted hat, a pot holder, ribbons tied on flip
flops, a painted t-shirt, a hair bow.....it's up to your imagination!
Take pictures of your group making the craft, along with the finished product and
we will post them in our CRAFT GALLERY!
A fun activity:
Try these ideas!
"Dress-up" party! Have fun getting dressed up and then go out somewhere and
show off your get ups....be fancy,be silly, pick a theme.....it's your choice! Plan a
trip to a local museum or park!
Tea Party! Tea Party time! Bring a favorite stuffed animal or doll and have a tea
party complete with homemade goodies that each girl brings to the party.
Dance Party! Order enough Girl Power CDs (our fund raising CD) to send home
with each girl. Have the girls bring their favorite music to the party and learn some
new dance moves! There might even be a dance teacher in your area who would
donate her time to teach the girls a dance they will love to do together over and
over and remember forever!
Time to talk about Rett Syndrome:
If you email us two weeks ahead of time with your contact info, we can mail you
special cards about Rett Syndrome to pass out to your group. (see card)
Once you go over the information on the card, you can branch out and talk related
things like:
- other kinds of disabilities
- related professions (researcher, neurologist, therapist, doctor, nurse, special
education teacher) - the girls experiences with people with special needs
- how they feel after learning about Rett Syndrome
To make this more personal you can email us for the name of a girl in your area to
"adopt." You can write her letters or email her. Send her one of the items you
created in her honor. You could even invite her to your next meeting (click here for
guidance with this).
REGISTER YOUR GROUP!
Why register? With any of the options, your group will get its own web page to show
off pictures of your event. If you make a craft, your item and photos can be posted
in our Craft Gallery! You will also receive information cards about Rett Syndrome
to share with the girls.
CLICK HERE TO REGISTER!
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