Click ''donate" to make an online contribution to Rett Syndrome research in honor of Abby!
Abby was born September 26, 2004 at a
whopping 9 and a half pounds. She has been
the light of our life every day since.
Abby was a typical happy loving baby who met
all of her milestones. She started speaking in
English and in Czech all the normal words
babies say. Momma Dadda, bubba, dog,
juice,coke, hello, bye bye, etc.
Just as she was starting to walk we noticed
some odd behavior. Only cruising along
furniture and her crib to the left. Week ankles.
The inability to fall asleep.
One day she woke up completely blank. She
stared at her fingers as if she had never seen
them before. Over the next few days she
refused to eat. Wouldn't play with her toys,
refused food and seemed to forget how to do
anything.
It took us 5 months and many doctors visits and
tests to figure out what she had. We were told
some kids just took longer or regressed when
taken off the breast or started to walk. We had
different possible diagnosis of in utero stroke,
Cerebral Palsy and PDD.
I found Rett Syndrome on my own in the back of
an Autism Spectrum Book at Barnes and Noble.
I can still remember the books spinning before I
screamed and hit the floor. We had her tested
the next week.
Abby's results came back on October 26th
2006. The worst day of our lives.
We have made it our mission to advocate, raise
awareness and funds for Rett Syndrome.
I run an online Rett syndrome Support Group
on Myspace for Mommy's and Daddy's to come
and vent, seek advice and learn.
Abby is in her second year of a special needs
preschool and loves it. She is the darling of her
school and her neighborhood.!
whopping 9 and a half pounds. She has been
the light of our life every day since.
Abby was a typical happy loving baby who met
all of her milestones. She started speaking in
English and in Czech all the normal words
babies say. Momma Dadda, bubba, dog,
juice,coke, hello, bye bye, etc.
Just as she was starting to walk we noticed
some odd behavior. Only cruising along
furniture and her crib to the left. Week ankles.
The inability to fall asleep.
One day she woke up completely blank. She
stared at her fingers as if she had never seen
them before. Over the next few days she
refused to eat. Wouldn't play with her toys,
refused food and seemed to forget how to do
anything.
It took us 5 months and many doctors visits and
tests to figure out what she had. We were told
some kids just took longer or regressed when
taken off the breast or started to walk. We had
different possible diagnosis of in utero stroke,
Cerebral Palsy and PDD.
I found Rett Syndrome on my own in the back of
an Autism Spectrum Book at Barnes and Noble.
I can still remember the books spinning before I
screamed and hit the floor. We had her tested
the next week.
Abby's results came back on October 26th
2006. The worst day of our lives.
We have made it our mission to advocate, raise
awareness and funds for Rett Syndrome.
I run an online Rett syndrome Support Group
on Myspace for Mommy's and Daddy's to come
and vent, seek advice and learn.
Abby is in her second year of a special needs
preschool and loves it. She is the darling of her
school and her neighborhood.!
A special thanks to our donors:
Pamela S Pelzman
Darla and Stu Saddoris
Nella Mann
Allen Summers
Stacie Anno
Pamela S Pelzman
Darla and Stu Saddoris
Nella Mann
Allen Summers
Stacie Anno
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